“PMS Struggles: Women Battling Undiagnosed PMDD” – Who are affected? How is the diagnosis obtained?

"A sufferer describes the profound effects of ovulation, feeling like a different person consumed by an unseen force. In their own words to Maya Oppenheim, they express feeling disconnected from themselves as if the world has lost its color."

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The Struggle of Misdiagnosis: Unveiling the Reality of PMDD

Unveiling a Widespread Issue

A recent study conducted by the University of Oxford has shed light on the prevalence of premenstrual dysphoric disorder (PMDD) affecting approximately 31 million women and girls globally. Despite this alarming figure, it is believed that the actual number of cases could surpass this estimate.

The Harsh Realities of PMDD

PMDD, a severe form of premenstrual syndrome (PMS), manifests with a spectrum of psychological and physical symptoms ranging from anxiety, depression, mood swings, joint pain, concentration difficulties, breast tenderness, headaches, to insomnia. These symptoms significantly impact the daily lives of those affected.

A Long Road to Diagnosis

Becci Smart, a resident of Bridgend in South Wales, narrates her 18-year struggle with misdiagnoses ranging from bipolar disorder to personality disorder and complex post-traumatic stress disorder. It wasn’t until 2019 that she was accurately diagnosed with PMDD after enduring years of dismissal and gaslighting by healthcare professionals.

The Journey of Seeking Help

Becci explains the overwhelming nature of PMDD symptoms that she experiences post-ovulation, describing a drastic shift in her demeanor characterized by extreme sensitivity to stimuli and a profound disconnect from herself and others. Despite trying various treatments, she found solace in a chemically induced menopause but acknowledges the mental toll it has taken on her.

A Call for Recognition and Support

The significant delay in diagnosing PMDD, averaging 12 years according to research, underscores the need for heightened awareness and education among healthcare providers. Many individuals with PMDD remain undiagnosed, grappling with debilitating symptoms without proper recognition or support.

FAQs

What are the main differences between PMDD and PMS?

PMDD is a more severe form of PMS, characterized by intense psychological and physical symptoms that can significantly impair daily functioning. While PMS symptoms are milder and typically subside once menstruation begins, PMDD symptoms persist and can be debilitating.

How does PMDD impact the daily lives of those affected?

PMDD can lead to a wide range of challenges, including mood swings, anxiety, depression, physical pain, concentration difficulties, and disruptions in interpersonal relationships. These symptoms can significantly hinder a person’s ability to carry out daily activities and maintain overall well-being.

Why is there a significant delay in diagnosing PMDD?

The delay in diagnosing PMDD can be attributed to limited awareness among healthcare professionals, overlapping symptoms with other conditions, and the relatively recent recognition of the disorder. This delay prolongs the suffering of individuals with PMDD and underscores the importance of enhanced education and training in this area.

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